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Sœurs Endo Afrique — Notre douleur mérite des mots
Resources· by Équipe Sœur Endo · 8 min read · 3/18/2026

Diagnosis journey in Africa: a practical guide

Who to turn to, what tests to request, what words to use. A practical guide, written with doctors from the continent.

Getting an endometriosis diagnosis in sub-Saharan Africa remains a path scattered with obstacles. This guide gathers the key steps and resource actors in the countries where the association operates.

1. Prepare your appointment

Before any visit, keep a notebook where you record: pain intensity (out of 10), dates of your periods, associated symptoms (nausea, fatigue, digestive pain), impact on daily life.

2. The words that open doors

Rather than "my stomach hurts", saying "I suffer from disabling dysmenorrhea and I would like to explore a possible endometriosis" often changes what follows.

3. Tests to request

  • Specialized endovaginal pelvic ultrasound
  • Pelvic MRI if available
  • Complete gynecological assessment

4. Who to turn to?

The association maintains a directory of trained clinicians in 12 African countries. Write to us to receive the confidential list.

Testimonials

What our sisters say.

African women share their experience with endometriosis.

« For ten years I was told the pain was just part of being a woman. The day I heard the word "endometriosis", I could finally name what I was living. Sister Endo Africa gave me a mirror: I wasn't crazy, I wasn't alone. »
AminataSenegal
« The listening circles changed something in me. Hearing other sisters tell their story was like hearing mine in stereo. You come out stronger. »
NadègeCameroon
« For ten years I was told the pain was just part of being a woman. The day I heard the word "endometriosis", I could finally name what I was living. Sister Endo Africa gave me a mirror: I wasn't crazy, I wasn't alone. »
AminataSenegal
« The listening circles changed something in me. Hearing other sisters tell their story was like hearing mine in stereo. You come out stronger. »
NadègeCameroon

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Every donation funds awareness campaigns, workshops and care for the most isolated women.